Sunday, February 15, 2009

A new addition

I am a sucker for black labs. They are smart and great with kids. Someone dropped two off at the market, and the man set up next to us was trying to find them a home. Sendai wants a dog when she moves to the farm so she started tossing around the idea of getting one. Once I saw them, I wanted one too. Darn cute puppies. Of course all the kids really wanted them. We started to work on Jody. At some point he said the dog could be my Valentine's Day present since he didn't get me one. He's such the romantic. The rest is history. The dog on the left is mine. Her name is Jasmine. Sendai's dog is on the right and her name is Bella (pronounced bay-ya). So far they've figured out how to get out of their pen, made their way to the IL's house, and dug up part of my flower bed. But they sure are cute!

Wednesday, February 11, 2009

So what is it?

We had the follow up with the neurologist today. After viewing the 6 or so episodes we got on video, he doesn't believe it is seizures. He's seen thousands of seizures and these just don't fit the mold. He said to call if they get worse but otherwise he's healthy. I'm relieved it's not epilepsy, but what is it then? I'm going to go back to his pediatrician and talk to him. There is a connection between the episodes and Sawyer's bowel movements. He doesn't always have a bm with the episodes, but I think he always has an episode with a bm. I wonder if maybe he has a fissure or something that is making it painful for him to poop and maybe that is causing the problems. I don't know. All I know is something isn't right.

Monday, February 2, 2009

Diagnosis unknown

It's been a long day. We didn't sleep well. Sawyer has a horrible cough and is wheezing and was restless. We left at 7:30. The clinic is 2 long hours away. Sawyer had the EEG. He was up early and we didn't let him sleep on the way there because they wanted him asleep for the study. He cried the saddest cries not because he was in pain, but because they were touching him and gluing electrodes all over his head. I was glad my sister was with me because Jody would not have been able to handle it. They did the test, we left and got a bite to eat and we headed back to meet with the neuro. The EEG was normal but by the descriptions of what is happening and the video of an episode I have my cellphone, he suspects it is complex partial seizures. He wants us to videotape some more episodes so he has "more ammunition" to work with. We are to go back next Wednesday with the videos and decide on a course of action. He gave us a prescription for a medicine in case he has a bad seizure that he doesn't come out of. If it is seizures, they will put him on topomax for at least two years. While we were there another ped heard Sawyer's cough and said it was worse than any of the patients she had seen today. I commented that he was wheezing and he's been on antibiotics for a week. She said he needed steroids so they wrote a script for that too. The two hour drive home seemed like it took forever. Sawyer slept the whole way. Poor thing. Now that we are home, I realize that he's running a low grade fever too. He looks sick. If he's not doing better in the morning, I'll probably make an appt with out reg ped. I can't imagine him being so sick after having a shot of roseffin (sp?) and being on oral antibiotics. I feel so bad for him being so sick after going through everything else today. Anyway, I'm exhausted. I think I'm going to give Sawyer a bath and try to get some of the goop out of his hair and then we will curl up in bed. Thanks for all your thoughts and prayers. They've really meant a lot to me.